Adrienne is a Sickle Cell Disease and stem cell patient advocate, the founder and Science Administrator of the Axis Advocacy Foundation, and a fifth-generation mother of a child with Sickle Cell Disease. She is a recipient of the highest honor in the regenerative medicine community, the 2018 Stem Cell and Regenerative Medicine Action Inspiration Award. She was one of the first supporters of the work done by UCLA’s Dr. Don Kohn in bone marrow and later stem cell transplants. She is a firm believer that stem cell science will cure Sickle Cell Disease and has dedicated a large portion of her life to improving the lives and overall healthcare of those living with the disease. Adrienne participates in educational conferences and seminars, meets with lawmakers to advocate for the Sickle Cell affected population, and supports funding for clinical trials. Adrienne also serves as an ambassador for the Americans for Cures Foundation.
Adrienne Shapiro
