Leadership & Members

Inspired By Need, Triumphant Through Action

California Chronic Care Coalition Leadership

While passion is often the fuel that inspires us to action, the CCCC’s core leadership is comprised of established professionals with the knowledge and experience to make change possible.

Elizabeth Helms

President and CEO

Liz Helms has been a leader within the patient’s rights movement since her recovery from Temporomandibular Joint Disorder (TMJ) in the mid-1990s. Her vision, breadth of knowledge and unwavering commitment to coalition building, grassroots advocacy, strategic planning, and policy development has earned her immense recognition and respect throughout California and nationally.

After co-founding the TMJ Society of California, a 501(c) 3 non-profit organization dedicated to bringing about changes in health care practices and laws to improve treatment for TMJ sufferers, she has helped shepherd many broad-based, first of-it’s-kind patient rights laws in California. Liz currently is the President/CEO of the California Chronic Care Coalition, an alliance of non-profit, social consumer and provider organizations united to improve the health of Californians with chronic conditions or diseases. Liz leads the National Stakeholders Specialty Medication Collaboratory, working to ensure access to affordable medications and advocates for the enforcement of anti-discrimination laws in the ACA. Liz was instrumental in bringing the clinical pharmacist on the care team to the Right Care Initiative which won her the Michelotti Public Health Prize from the CA Pharmacy Foundation. In addition to her CCCC leadership roles, Ms. Helms has been the catalyst within the chronic disease community working with the California administration’s health policy division on health care reform, including implementation of prevention, wellness and coordination of care. In 2013 she was elected to the board of directors to the California Healthcare Performance Information System (CHPI) representing California’s consumers and serves on many advisory committees including:
California Department of Public Health, Chronic Disease Division, Prevention 21, which includes: Comprehensive Medication Management, SALT, Healthy Hearts CA. Additionally, she is a member or advisor on CA Telehealth Coalition; UC Berkeley, School of Public Health – PCORI grant: “The Comparative Impact of Patient Activation and Engagement on Improving Patient-Centered Outcomes of Care in Accountable Care Organizations”, and is a member of the CA Right Care Initiative. Recently Liz was elected to a national AIMM board, (Alliance of Integrated Medication Management).

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Joan Werblurn R.N.

Board Chair

Joan is Vice Chair of the Board of Directors of the California Health Collaborative, a nonprofit organization administering programs throughout California to promote quality life and health care in the underserved populations.

She has spent over thirty years as the Diabetes Nurse Expert for the UC Davis Hospital and Medical School. She was recruited by the State of California Health Department to head a project to develop a statewide program for standards of care and management of Diabetes and she chaired this project for two years. She was the Chair of the program which became the Diabetes Coalition of California and was given a proclamation, by then-Governor Pete Wilson, for her work in Diabetes. She served on local, state and national boards and committees of the American Diabetes Association for 27 years. She was awarded a grant from the American Pharmacists Association Foundation and spent a year with migrant farm laborers in the Lost Hills, California area as part of the Project Impact, a national study of patient empowerment and care in the field of Diabetes. She has spent time in Nigeria and Ghana working in villages and hospitals teaching diabetes management to hospital staff and patients. She served as the founding chair of Citizens for the Right to Know, a nonprofit patient activist organization and worked with legislation to create the Department of Managed Care. She is retired from UC Davis but continues her work in Diabetes throughout the state.

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Shannon Smith-Crowley, JD, MHA

Treasurer

Shannon Smith-Crowley has been a registered lobbyist in California for almost 20 years. Her insights are informed by her previous experience in managed health care.

After a 4 year tenure advocating with the California Medical Association, where she focused on managed health care, medical staff, legal issues and reproductive health, she founded Partners In Advocacy to specialize in medical and reproductive health advocacy.

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Steven Schultz

Secretary

Steven Schultz has been with the Arthritis Foundation since 2014. He started with the Arthritis Foundation as the Advocacy Coordinator assisting with grassroots advocacy in the region before transiting to the role of Legislative Analyst.

Currently, Steven serves as State Director, Advocacy & Access managing government affairs in a 12 pacific states. Within his role at the Arthritis Foundation, Steven sits on the board for the California Chronic Care Coalition and steering committee for the Nevada Chronic Care Collaborative.

Prior to working at the Arthritis Foundation, Steven served as a law clerk for one of the most prominent law firms in Sacramento, Dreyer Babich Buccola Wood and Campora, LLP. In addition, Steven has worked for Wells Fargo in their historical services department. While in college, Steven had the opportunity to participate in two highly competitive internships within state government including one with Governor Arnold Schwarzenegger’s Office of Constituent Affairs. Steven attended Greenville College (approximately 45 minutes east of St. Louis in Illinois) where he earned a Bachelor’s of Arts in History/Political Science with a Business minor. While in college, Steven played football including 3 years as a starter on the offensive line.

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Policy Committee Chair; Shannon Smith-Crowley, JD Communications Committee

Bill Remak, CA Hepatitis C Task Force

Nancy Rene, Axis Health

Chuck Dorcich, Advisor, Cutting Edge Productions

Emeritus Board Members

Liz Helms

Joan Stevie

Bill Remak, CA Hepatitis C Task Force

California Chronic Care Coalition Members

Corporate Members

AbbVie

AstraZeneca

Bristol-Myers Squibb (BMS)

GlaxoSmithKline (GSK)

Johnson & Johnson Healthcare Systems Inc.

Lilly

Sanofi